Eligible Diagnoses

Individuals eligible to join the International LGDA Registry for Lymphatic Malformations include those persons diagnosed with:

Gorham's Disease or Gorham's Syndrome
Acro-Osteolysis syndrome
Combined Capillary/Venous/Lymphatic Malformations
Combined Venous/Lymphatic Malformations
Cystic Angiomatosis
Diffuse Pulmonary Lymphangiomatosis
Disappearing Bone Disease
Disseminated Osseous Bone Disease
Essential Osteolysis
Generalized Lymphatic Anomaly
Gorham-Stout Syndrome
Idiopathic Chylous Effusions
Idiopathic Massive Osteolysis
Kaposiform Lymphangiomatosis
Lymphoproliferative Disorder
Macrocystic Lymphatic Malformation
Massive Osteolysis
Microcystic Lymphatic Malformation
Morbus-Gorham-Stout Disease
Phantom Bone Disease
Primary Chylous Effusions
Skeletal Hemangiomatosis
Vanishing Bone Disease

The registry is also open to those diagnosed with non-specific lymphatic malformations and osteolytic bone diseases including, but not limited to, lymphangiectasia, Hypophosphatasia (HPP), and Osteogenesis Imperfecta.

The registry also seeks to include patients who have died from complications of these conditions or other causes. Data collected about patients who have died is extremely important in helping to understand the natural history of these diseases.