Thanks to people like you, the experience of living with a Complex Lymphatic Anomaly (CLA) can be understood like never before. The more health information we collect through this patient registry, the closer we can get to helping our research community find treatments that work. Check out this video to learn more.
Patients have more at stake in diagnosis and treatment of complex lymphatic anomalies (CLAs) than anyone else involved in their healthcare.
The patient voice is a crucial part of designing research and finding treatments that work.
Each registry profile adds to our body of knowledge. We learn where patients are located, what symptoms they are experiencing, how they are being treated by their doctor, and what challenges they face in getting care.
All of this information is vital for better understanding the diversity of the CLA community and for planning both basic science research and clinical trials.
Thanks to people like you, the experience of living with a complex lymphatic anomaly (CLA) can be understood like never before.
This registry has no borders and is not bound to a medical institution or a specific type of research. If you have a CLA, wherever you are in the world, you can join the LGDA Patient Registry. Parents can join for their children.
We compile the de-identified data we collect through this patient registry to expand the basic knowledge about CLAs and their impact on patients and families; advocate for the unmet needs of CLA patients; develop standards of care for diagnosis and patient care; and increase and accelerate research.
LEARN MORE
The Registry is a patient outreach and research development project of the LGDA.
Patients have more at stake in diagnosis and treatment of complex lymphatic anomalies (CLAs) than anyone else involved in their healthcare.
The patient voice is a crucial part of designing research and finding treatments that work.
Each registry profile adds to our body of knowledge. We learn where patients are located, what symptoms they are experiencing, how they are being treated by their doctor, and what challenges they face in getting care.
All of this information is vital for better understanding the diversity of the CLA community and for planning both basic science research and clinical trials.
Thanks to people like you, the experience of living with a complex lymphatic anomaly (CLA) can be understood like never before.
This registry has no borders and is not bound to a medical institution or a specific type of research. If you have a CLA, wherever you are in the world, you can join the LGDA Patient Registry. Parents can join for their children.
We compile the de-identified data we collect through this patient registry to expand the basic knowledge about CLAs and their impact on patients and families; advocate for the unmet needs of CLA patients; develop standards of care for diagnosis and patient care; and increase and accelerate research.
