Individuals eligible to join the International LGDA Registry for Complex Lymphatic Anomalies include those persons diagnosed with:

• Generalized Lymphatic Anomaly (GLA)
• Gorham-Stout disease (GSD)
• Kaposiform Lymphangiomatosis
• Central Conducting Lymphatic Anomaly (CCLA)
• Lymphangiomatosis (now GLA or generalized lymphatic anomaly)

Or one of older, less used names for the various CLAs, including:

• Cystic Angiomatosis
• Cystic Hygroma
• Diffuse Pulmonary Lymphangiomatosis
• Disappearing Bone Disease
• Disseminated Osseous Bone Disease
• Essential Osteolysis
• Idiopathic Chylous Effusions
• Idiopathic Massive Osteolysis
• Lymphangiectasia
• Massive Osteolysis
• Phantom Bone Disease
• Primary Chylous Effusions
• Skeletal Hemangiomatosis
• Vanishing Bone Disease

The registry also seeks to include patients who have passed away from complications of these conditions or other causes. Data collected about patients who have passed away is extremely important in helping to understand the natural history of these diseases.